My hope for Down Syndrome Awareness Day March 21 would be the elimination of 'suffer' when referring to Down syndrome such as 'he suffers from Down syndrome'. Most people with Down syndrome are living full happy healthy lives without pain unless they get seriously ill or hurt but having Down syndrome itself is not a life of suffering.
24 hours after a birth fraught with complications, we were told that the medical professionals thought Seb had Down's syndrome. What should have been the happiest day of my life was the worst. For Simon, my husband, it was very different. He accepted the diagnosis from day one and through all my tears and heartbreak he constantly reassured me that we would cope.