Palliative Care

Life to the Full

Ally Paget | Posted 17.11.2015 | UK Politics
Ally Paget

This research comes at a watershed moment for the relationship between charities and government. Life to the Full represents our plea for both to be ambitious - ambitious for what they can achieve when they work together, and ambitious for this too-long-overlooked group of children.

It is the Greatest Privilege to Help Someone at Their Last Moments

Elizabeth Wolley | Posted 05.11.2015 | UK Lifestyle
Elizabeth Wolley

When I walked on set to film the new Marie Curie advert, it was not as an actor but as a Marie Curie Nurse. It was an odd feeling but I was able to slip into my role when I began speaking to one of the actors who had only recently experienced a bereavement.

Improvements in End of Life Care Must Be Funded, And 20,000 People Agree With Us

Nikki Hill | Posted 30.10.2015 | UK
Nikki Hill

At the height of the summer, Marie and I wrote an open letter to the Chancellor George Osborne urging him to include funding for improvements in end o...

The Last Days of Life

Naomi Barrow | Posted 20.10.2015 | UK Universities & Education
Naomi Barrow

I can't imagine how it must feel to wonder which part of your body might fail on you next, to know that you might not live to the weekend and will never feel the sun on your skin again. Yet, she faces it with a dignity and grace that most of us can't muster when faced with the prospect of a half-hour trip on a weird smelling bus, never mind much else.

Mum Is Dying

Naomi Barrow | Posted 13.10.2015 | UK Universities & Education
Naomi Barrow

I don't know how long Mum has left. I know that she's tired, that she's been battling this illness for a long time and it's not a nice position to be in. We're lucky because we have an amazing network of friends around us who constantly offer lifts, food, hugs, and an ear.

Mum Wanted to Die So She Wouldn't Be a Burden - But Convincing Her to Live Gave Us Both a Gift Beyond Measure

Baroness Ilora Finlay | Posted 03.09.2015 | UK
Baroness Ilora Finlay

I will never regret that our law protected her; preventing her from ending her life when she was vulnerable to despair. Those four years we shared were the most precious gift. Without them, Mum would have missed what she described as some of the richest times in her life and we would have missed understanding just what an amazing person she was.

I Miss Our House Being Noisy

Naomi Barrow | Posted 05.08.2015 | UK Universities & Education
Naomi Barrow

When I get up on a morning now, everyone is still asleep. I get up in silence, creep around the house getting ready for my run before returning, showering, and getting ready for work as quietly as possible. I walk through the door on an evening now and I see and hear nobody. It's silent.

Palliative Care Services Reform - England Needs to Heed Its Neighbours

Baroness Ilora Finlay | Posted 07.07.2015 | UK
Baroness Ilora Finlay

England has the chance through my Private Member's Bill to improve care. The Bill would require all commissioners to ensure their patient population has access to seven day specialist palliative care services, that patients and their families have a clear point of contact in a crisis, that there is advice available at all times to front line staff caring for dying patients and that such staff have all received core training in good end of life care.

Lets Talk About Death, So We Can Get on With Living

Stephanie Nimmo | Posted 06.07.2015 | UK Lifestyle
Stephanie Nimmo

We really don't handle the whole issue of dying well in this country do we? It's just not something spoken about, a taboo subject. We are all going to die so why do we not make sure our wishes are clear so that whenever or wherever it happens those who are left behind know what to do.

The BBC Drama Department Is A Terrible Place To Die

Jonathan Ellis | Posted 10.06.2015 | UK
Jonathan Ellis

Walford and Holby aside, I have visited hospices across the UK and I am yet to see one that would be described anything like "dingy" or "grotty".

Consider Evidence, Not Emotion or Off-The-Shelf Opinion, on 'Right to Die'

Baroness Ilora Finlay | Posted 03.06.2015 | UK
Baroness Ilora Finlay

I don't bulk-buy my opinions. I don't rely solely on emotion, polls of the general public or even the views of "people like me", to determine my position on where the balance of the law should rest. I consider the evidence.

Palliative Care Bill - We Need More Efficient and Equitable Care and Support for Those Most in Need

Baroness Ilora Finlay | Posted 01.06.2015 | UK Politics
Baroness Ilora Finlay

With 355,000 people a year in need of palliative care in England alone, this conversation seems long overdue. The recent 'Dying without Dignity' report highlighted the problems and failings of a system that has the knowledge of what needs to be done but fails to make it happen.

Why Am I Blogging About Terminal Cancer?

Naomi Barrow | Posted 24.05.2015 | UK Universities & Education
Naomi Barrow

As a young person living with a parent who has a terminal diagnosis, I've discovered a fairly considerable hole in the people-dying-support-system stuff. There is a lot of support out there for children with a close family member who is dying; there is a fair amount of support for spouses and for parents of people who are dying.

Failings in Care Should Not Pave the Way for a Physician Assisted Dying Bill

Baroness Ilora Finlay | Posted 22.05.2015 | UK
Baroness Ilora Finlay

There is no excuse for turning a blind eye to distress; those providing care, whether care assistant, family, nurse or doctor need to know they are supported in doing what the patient needs, not shackled by risk averse attitudes that paralyse common sense and hinder care provision.

You Only Die Once - Why Dying Matters

Joe Levenson | Posted 18.05.2015 | UK
Joe Levenson

Whether it's through writing a will, making financial plans, planning for our future care and support including through making a Lasting Power of Attorney, or deciding whether we want to join the organ donor, all of us can increase the likelihood of getting our wishes met and reduce the chances of life after our death becoming even more difficult for the people we care about.

What Does Quality Really Mean in Hospice Care?

Jonathan Ellis | Posted 09.05.2015 | UK
Jonathan Ellis

More recently, the new inspection regime introduced by the Care Quality Commission (CQC) - the regulator for health and adult social care in England - is helping provide a better understanding of quality in hospice care.

What Do You Know About Hospice Care?

Jonathan Ellis | Posted 14.12.2014 | UK Lifestyle
Jonathan Ellis

The reality is that hospice care is delivered in a surprising range of settings, including in people's homes. In fact 90% of hospice care is delivered away from a hospice building. Hospice teams are also involved in educating staff working in other settings such as care homes and hospitals.

Why Are So Many Secondary Breast Cancer Patients Needlessly Suffering From Pain?

Danni Manzi | Posted 12.12.2014 | UK Lifestyle
Danni Manzi

Breast Cancer Care recently surveyed women and men affected by secondary breast cancer, which cannot be cured. We wanted to establish if they were in pain because of the side effects of their cancer and treatment. Shockingly, we found that 90% of them were, many of them on a near daily basis.

Fairer Funding For Hospices Would Benefit Patients And The NHS

Jonathan Ellis | Posted 20.10.2014 | UK
Jonathan Ellis

These are tough economic times for statutory funding of healthcare. It would be unrealistic to expect NHS funding for hospice care, which has on average made up a third of funding (32 per cent) for adult hospices and 17 per cent for children's services, to be exempt from this.

Is It Depressing to Work at Hospice?

Yumiko Sato | Posted 12.10.2014 | UK Lifestyle
Yumiko Sato

Is it depressing to work at hospice? As a music therapist specializing in hospice I've been asked this question many times before. I can understand ...

Children's Hospice Week - Busting the Myths of Palliative Care

Rachel Braier | Posted 15.08.2014 | UK Lifestyle
Rachel Braier

Today marks the start of Children's Hospice Week - seven days of awareness raising, highlighting the vital care and support that these services provide to seriously ill children and their families.

Medical Research Is Not Funded By Selfies

Emma Watts | Posted 19.05.2014 | UK Lifestyle
Emma Watts

My facebook timeline was flooded with selfies this morning. Bare-faced, no-filter (ahem) selfies, posted by friends in the name of cancer awareness and asking others to do the same. In my usual bleary-eyed, early morning confusion I couldn't understand why, on a social networking site where most of us scroll mindlessly through the interminable selfies of the people on our friends list every single day, another selfie would help cure cancer.

Power to the People: A Long Term Care Revolution

Ian Spero | Posted 06.05.2014 | UK
Ian Spero

Fuelled by the growth of electronic medical records, according to The Telegraph people of all ages are waking up to the potential of patient power...

Cancer Research Funding Reaches New Heights, but What About Holistic Care?

Ian Spero | Posted 02.02.2014 | UK Lifestyle
Ian Spero

What is perhaps less well reported is that there are also thousands of people every year who are living with cancer long term, struggling to maintain their standard of living. And, while treatment has advanced significantly since the 1960s, palliative care has not.

Controversial End-Of-Life Care 'Should Be Scrapped'

PA/ The Huffington Post UK | Posted 13.07.2013 | UK

An independent review of a controversial end-of-life regime is likely to recommend that it is phased out, it has emerged. The review of the the Liv...