Palliative Care

A Time For Reflection

Barbara Gelb | Posted 04.08.2017 | UK
Barbara Gelb

There is an opportunity for the Prime Minister to respond to the challenges faced by the 49,000 - we hope she will listen to these, the weakest, most vulnerable voices so that we can improve the quality of life and end of life care, however short that might be.

My Bionic Woman

Lucy O'Brien | Posted 13.06.2017 | UK Universities & Education
Lucy O'Brien

I'm a 29-year-old mental health nursing student from the University of South Wales, and I've been the sole carer for my mother, who has terminal cancer and is now receiving palliative care at home.

To Achieve Radical Change End-Of-Life Providers Need To Address Some Home Truths

Lloyd Riley | Posted 24.05.2017 | UK
Lloyd Riley

When doctors argue against assisted dying they are ignoring evidence that shows that greater patient choice is key to improving end-of-life care. Dyin...

Dementia Deaths 'Set To Almost Quadruple By 2040'

Press Association | Natasha Hinde | Posted 18.05.2017 | UK Lifestyle

The number of people who die from dementia is set to rocket over the coming years, a new study has found. By 2040, it is estimated that 219,409 people...

Moors Murderer Ian Brady ‘At Death’s Door’

The Huffington Post | Sara C Nelson | Posted 15.05.2017 | UK

Moors murderer Ian Brady is said to be at death’s door and in the care of nurses specialising in end-of-life care. Brady, 79, was jailed for life in...

A Long Goodbye: When Dementia Takes Someone You Love

Jessica Hanson | Posted 14.05.2017 | UK Lifestyle
Jessica Hanson

Slowly, painfully slowly, the good days were fewer and fewer, and our visits mainly consisted of us trying to make conversation with someone who barely knew we were there. My grandma would dutifully feed him biscuits when we visited. A woman in the corner of the day room, with white hair that stood on end, screamed periodically like a crowing rooster. The nurses seemed kind.

Compassionate Care For A Satellite

Dr Mark Taubert | Posted 13.02.2017 | UK Lifestyle
Dr Mark Taubert

Breaking bad news is a very complex communication task. Many doctors and nurses will have heard of various forms of guidance to help deliver bad news, one of which is the SPIKES mnemonic (1) and I will try to summarise what I might have done initially to help Fengyun:

Future Of The NHS - A Patient's Eye View

Michael Wenham | Posted 20.01.2017 | UK Politics
Michael Wenham

My primary purpose here is, as a patient, to join calls, like those made by the 75 leading health experts to Theresa May on 11th January, for radical solutions to the break-down of our health and care system. It is not a problem for us that can wait for some utopian answer in 2020. Let's accept that we'll die - but avoid the unacceptable shortcut of the sirens' road towards euthanasia, the cheap solution.

Families Of Seriously-Ill Children Feeling The Strain Of Funding Cuts

Barbara Gelb | Posted 22.11.2016 | UK
Barbara Gelb

As the Chancellor rises to his feet to give his much-anticipated Autumn Statement tomorrow, there will be much jeering and cheering from all sides of the House of Commons. In the detail of the important announcements that will be made on Wednesday there is a danger that one voice won't be heard. The voice of children and young people with life-shortening conditions.

Why A Person's Death Should Never Be Painful

Clare Periton | Posted 17.10.2016 | UK
Clare Periton

Last Saturday 8th October marked World Hospice and Palliative Care Day, and this year the theme is 'living and dying in pain: it doesn't have to happen' - an important message on an even more important day. It has now been statistically proven that people who receive palliative care can live for longer.

Going Home

Angela Irvine | Posted 11.10.2016 | UK
Angela Irvine

Going home can mean different things to different people. To some it's that joyful packing up of your bag at the end of a busy day at the office. To o...

Children's Hospices Are Short On Nurses And The Impact On Families Is Heartbreaking

The Huffington Post | Rachel Moss | Posted 10.10.2016 | UK Lifestyle

More than 50,000 children in the UK are expected to have short lives and many are being robbed of the support they deserve. According to the charity T...

Children's Nurses Needed To Bridge Care Gap

Dame Elizabeth Fradd | Posted 06.10.2016 | UK
Dame Elizabeth Fradd

I've been a nurse for nearly 50 years, many of them on the front line in the care of sick children. It's a proud, positive and much loved profession. But as I write today, children's palliative nursing is facing a crisis: the number of children with life-limiting conditions that need care and support is increasing but the number of nursing posts to provide that support is failing to keep apace.

Our Commitment Is That Every Person Nearing the End of Their Life Should Expect a Good Death

Ben Gummer | Posted 07.07.2017 | UK Politics
Ben Gummer

A good death - peaceful, dignified, reflective, compassionate, in the loving embrace of those closest to the dying person - is already a happy end for hundreds of thousands of people across our nation. In making this commitment, we make that promise universal, so that every dying person in England can live in anticipation of a good death.

How to Talk to Children About Death and Dying

Clare Periton | Posted 14.04.2017 | UK Parents
Clare Periton

At some point, children will ask about dying. We know they require honest answers, but it can be very difficult to know the best way to talk about the subject. I have put together some different approaches to consider when talking to your children about the different types of death and grief.

No Matter What the Circumstance, Play Should Be a Part of a Child's Life

Clare Periton | Posted 25.02.2017 | UK Parents
Clare Periton

Play is incredibly important to a child's emotional wellbeing. It is even more important for children with special needs to feel integrated into everyday society, doing the same things as their peers without judgement or limitation.

Reflections on Advance Decisions to Refuse Treatment and What the Future May Hold

Dr Mark Taubert | Posted 19.02.2017 | UK
Dr Mark Taubert

A report from a public policy think tank in Wales has highlighted the need for more coordinated approaches to advance care planning. There is a need to focus on a subcategory of this very broad area: Advance Decisions to Refuse Treatment.

Quality End-Of-Life Care Must Be Universal

Clare Periton | Posted 12.02.2017 | UK
Clare Periton

People die all the time, much as babies are born all the time. What lies at the centre of good palliative care is the ability to listen and shape treatment and care around the individual, thinking about their needs, not just their symptoms.

A Thank You Letter to David Bowie From a Palliative Care Doctor

Dr Mark Taubert | Posted 18.01.2017 | UK
Dr Mark Taubert

Whilst realisation of your death was sinking in during those grey, cold January days of 2016, many of us went on with our day jobs. At the beginning of that week I had a discussion with a hospital patient, facing the end of her life. We discussed your death and your music, and it got us talking about numerous weighty subjects, that are not always straightforward to discuss with someone facing their own demise. In fact, your story became a way for us to communicate very openly about death, something many doctors and nurses struggle to introduce as a topic of conversation.

Britain's Celebrated Care Sector Can't Run on Praise Alone

Clare Periton | Posted 22.12.2016 | UK
Clare Periton

I am well aware, of course, that hospices are by no means alone in excelling in their field. The charity sector as a whole consistently provides world class, specialist support across a range of areas and increasingly fills the gaps of previously State commissioned services.

In Defense of the Liverpool Care Pathway

Nick Cartwright | Posted 17.12.2016 | UK Politics
Nick Cartwright

It was announced in the media, to general applause, that after the Liverpool Care Pathway (LCP) was subjected to almost universal criticism NICE have ...

Life to the Full

Ally Paget | Posted 17.11.2016 | UK Politics
Ally Paget

This research comes at a watershed moment for the relationship between charities and government. Life to the Full represents our plea for both to be ambitious - ambitious for what they can achieve when they work together, and ambitious for this too-long-overlooked group of children.

It is the Greatest Privilege to Help Someone at Their Last Moments

Elizabeth Wolley | Posted 03.11.2016 | UK Lifestyle
Elizabeth Wolley

When I walked on set to film the new Marie Curie advert, it was not as an actor but as a Marie Curie Nurse. It was an odd feeling but I was able to slip into my role when I began speaking to one of the actors who had only recently experienced a bereavement.

Improvements in End of Life Care Must Be Funded, And 20,000 People Agree With Us

Nikki Hill | Posted 27.10.2016 | UK
Nikki Hill

At the height of the summer, Marie and I wrote an open letter to the Chancellor George Osborne urging him to include funding for improvements in end o...

The Last Days of Life

Naomi Barrow | Posted 20.10.2016 | UK Universities & Education
Naomi Barrow

I can't imagine how it must feel to wonder which part of your body might fail on you next, to know that you might not live to the weekend and will never feel the sun on your skin again. Yet, she faces it with a dignity and grace that most of us can't muster when faced with the prospect of a half-hour trip on a weird smelling bus, never mind much else.