Hostility and Rudeness Blight Lives of 69,000 With Parkinson's

Steve Ford | Posted 19.06.2015 | UK
Steve Ford

People with Parkinson's have told us they've been stared at, had their symptoms mistaken for drunkenness, and even been laughed at in public because of their symptoms.

Parkinson's Awareness Day

Elaine Benton | Posted 08.06.2015 | UK Lifestyle
Elaine Benton

As absurd as it sounds, I could swear the older I get, the faster time speeds up! It's hard to imagine a whole year has passed and here we are once again, marking the 11 April as Parkinson's Awareness Day. A very appropriate date, i.e. the birthday of the infamous Dr James Parkinson, who first recorded the disease in 1817.

When Hospital Isn't the Safest Place to Be

Steve Ford | Posted 05.05.2015 | UK
Steve Ford

From January 2013 to December 2014 people with Parkinson's were subject to over 3,300 avoidable medication errors in hospitals across England. Almost 600 of these caused discernible harm including increased pain, severe rigidity and hallucinations.

A breath Test to Diagnose Parkinson's - Hard Science or Hot Air?

Steve Ford | Posted 12.04.2015 | UK
Steve Ford

We've been struggling for decades to find the answer - a definitive diagnostic test for Parkinson's. So far brain scans, blood tests and urine samples haven't come up with the goods. As a result there's often doubt, and even error, in Parkinson's diagnosis, particularly in the early stages.

People With Parkinson's Confused and Abandoned After Diagnosis

Steve Ford | Posted 04.04.2015 | UK Lifestyle
Steve Ford

This chronic lack of information and support is leaving people with Parkinson's feeling discarded and deserted at the toughest time of their lives. This is simply unacceptable.

When to Stop Driving

Elaine Benton | Posted 17.11.2014 | UK Lifestyle
Elaine Benton

I was diagnosed with Parkinson's at age 44, and at the beginning as symptoms started to appear and make themselves known to me, I paid close attention to my driving. The last thing I wanted was to be driving when I shouldn't. I had no intention of putting myself in danger, or worse still causing an accident and hurting someone I love or any innocent victim.

No Sense of Direction

Elaine Benton | Posted 15.09.2014 | UK Lifestyle
Elaine Benton

I will admit many things, one of which is my inability to follow a map, and poor sense of direction. Well, if I were being totally honest, I'd confess, I have no sense of direction whatsoever. My husband will quite happily back me up on this point for I have demonstrated on many occasion, much to my shame and his amusement, getting lost even in familiar surroundings.

Caregivers of Rare Diseases

Elaine Benton | Posted 04.08.2014 | UK Lifestyle
Elaine Benton

Being a caregiver of a loved one is far from an easy task, and is probably the last thing anyone thinks of when young and falling in love. Suddenly the life you had mapped out is abruptly thrown off route and extensive changes have to be made on an emotional and physical level.

Billy Connolly Is Not A Hobbit Fan

The Huffington Post UK | Posted 10.03.2014 | UK Comedy

National treasure (TM) Billy Connolly may be playing a dwarf in the next Hobbit movie - but he's not a fan of Tolkein's work, as he revealed on Conan ...

Rare Disease Awareness Day 2014

Elaine Benton | Posted 28.04.2014 | UK Lifestyle
Elaine Benton

The last day of February each year has been designated as Rare Disease Awareness Day, a world wide effort to bring greater awareness to the general public, governments, health policy makers, along with research and development.

Gene Therapy Treatment For Parkinson's Shows Promise, Researchers Say

PA/The Huffington Post UK | Posted 23.01.2014 | UK Lifestyle

A gene therapy for Parkinson's disease has produced promising results in its first patient trial, say researchers. The ProSavin treatment uses an i...

Life Is Not Black & White

Elaine Benton | Posted 03.03.2014 | UK Lifestyle
Elaine Benton

Born with Gaucher disease and battling for the last eight years with Parkinson's, I became an advocate for both diseases. It may sound odd, but my ill health has taken me on a tremendous journey, one which I would never have dreamt of a few years back.

These Shoes Were Made for Walking

Elaine Benton | Posted 27.01.2014 | UK Lifestyle
Elaine Benton

How the shoe industry must love us ladies, who generally own far more shoes than we need, and in a heartbeat will fall in love with a pair that are simply calling out our name. Due to my health, I had to unfortunately stop wearing high heeled shoes long ago.

On a Scale of One - 10

Elaine Benton | Posted 25.01.2014 | UK Lifestyle
Elaine Benton

How many times have you been asked by a doctor; "On a scale of 1 - 10, how bad is the pain?" Unfortunately I've been asked this question too many times to count. I realise a doctor needs some indication, a clue as to what he/she is dealing with, but I wonder how helpful this unreliable approach really is.

Parkinson's Problems We Don't Talk About

Elaine Benton | Posted 23.01.2014 | UK Lifestyle
Elaine Benton

The stereotypic symptom of someone with Parkinson's is they merely shake. With today's wide array of medications, the shaking can be brought under control to some degree, but there are many more rotten symptoms.

Could Laser Photo Therapy Cure Alzheimer's And Parkinson's?

The Huffington Post UK | Posted 04.11.2013 | UK Lifestyle

Scientists may have paved the way towards a cure for Alzheimer's, Parkinson's and Creutzfeldt-Jakob disease (AKA mad cow disease) by using lasers in p...

Think Big - Think Loud

Elaine Benton | Posted 23.01.2014 | UK Lifestyle
Elaine Benton

Despite my ill-health, I have great clarity, my mind is sharp and most importantly, I've maintained a sense of humour which gets me through each day. The hellish thought of being unable to speak, imprisoned by Parkinson's petrifying cloak of silence, terrifies me.

Gene Discovery Could Hold The Key To Treating Alzheimer's And Parkinson's Disease

PA/The Huffington Post UK | Posted 28.10.2013 | UK Lifestyle

A rare childhood disease may hold clues to treating Alzheimer's and Parkinson's, a study has found. Scientists analysing A-T disease, which leaves ...

Weathering Parkinson's

Elaine Benton | Posted 23.01.2014 | UK Lifestyle
Elaine Benton

Parkinson's disease is pretty much like the weather; unpredictable like a force of mother nature with a will of its own, that we have no control over. Symptoms and side effects are inconsistent as they vary from patient to patient. There are good days and bad days.

Shake, Tremor and Cook

Elaine Benton | Posted 23.01.2014 | UK Lifestyle
Elaine Benton

I have always loved to cook, and am passionate about using healthy fresh ingredients, serving food in an appetising manner, everything being home made, you can almost taste the love in every bite. Parkinson's slows me down considerably and I'm no longer able to whip up a quick meal as I once did.

Stepping Out

Elaine Benton | Posted 23.01.2014 | UK Lifestyle
Elaine Benton

For any Parkinson's patient, stepping out, can be a stressful experience, even when invited to a happy occasion or event. Most healthy people don't realise what it takes for someone suffering any chronic condition to go out and socialise.

Gaucher Awareness Month

Elaine Benton | Posted 02.12.2013 | UK Lifestyle
Elaine Benton

Having a rare disease may sound special, but believe me, it's not. Growing up isolated, I never met another Gaucher patient and had no form of support in my youth.

Depression Can 'Triple Risk Of Parkinson's Disease'

PA/The Huffington Post UK | Posted 03.10.2013 | UK Lifestyle

Depression can triple the risk of developing Parkinson's disease, according to researchers. Scientists in Taiwan studied the medical records of 4,6...

What Does Love Feel Like?

Elaine Benton | Posted 25.11.2013 | UK Lifestyle
Elaine Benton

"What does love feel like?" Although a very pertinent question, I found it hard to put into words, so that a six year old could understand. How could such a young child grasp the concept of love?

Who's Shaking the Bed?

Elaine Benton | Posted 18.11.2013 | UK Lifestyle
Elaine Benton

Early one morning, my husband and I lay in bed waiting for the alarm clock to go off. It was barely six am, when I suddenly felt the bed jolting violently. I thought it was my husband who was responsible for the disturbance, and he in turn, knew it had to be me with Parkinson's...