Parkinsons

Dad With Parkinson's Couldn't Decorate House For Years, His Kids Organised The Best Surprise

The Huffington Post | Natasha Hinde | Posted 28.09.2017 | UK Lifestyle

Steve Ryan, 61, was diagnosed with Parkinson’s disease 12 years ago. Ever since, his wife Sue, 55, has adapted to life as his full-time carer. The p...

Virtual Company Is The Next Step To Create New Drugs For Parkinson's

Steve Ford | Posted 05.06.2017 | UK Tech
Steve Ford

200 years since Parkinson's was first recognised as a condition, science has unlocked key discoveries that could transform lives. Now, this innovative new way of working will enable the charity to help harness these research discoveries and help find a cure in years - rather than decades.

I Fight My Fiancé's Killer Every Day - Parkinson's Awareness Week

Amanda Elias | Posted 13.04.2017 | UK Lifestyle
Amanda Elias

This week is Parkinson's Awareness week and I will be blogging about my experience as the partner of a person with Parkinson's. My fiancé Ryan was diagnosed in 2015 at 36 with Early Onset Parkinson's Disease.

Why We Won't Wait

Steve Ford | Posted 10.04.2017 | UK
Steve Ford

Today, we're saying that we won't wait any longer to deliver better treatments and a cure, faster. That's why Parkinson's UK is spearheading, with the expertise of the research community and the support of people with Parkinson's, the revolution needed to take promising treatments out of the lab and into doctors' surgeries.

The Role Of Health Technology In Lessening Pressures On The NHS

Professor Malcolm Horne | Posted 07.04.2017 | UK Tech
Professor Malcolm Horne

In fact, health technology is already stepping up to the mark in many areas, by improving our ability to monitor, measure and record symptoms, medication compliance and patient outcomes. Combined with the power of advanced analytics and patient-friendly interfaces, these technologies promise major benefits.

Taking Money From People With Parkinson's Won't Get Them Into Work

Phil Reynolds | Posted 06.02.2017 | UK
Phil Reynolds

The Government must scrap this terrible ESA cut and focus instead on improving the accuracy of the assessment process, so that people with Parkinson's and other conditions get the right support first time and are not bullied into work inappropriately.

Continuing To Care?

Steve Ford | Posted 14.11.2016 | UK
Steve Ford

As an organisation we exist to make life better for every one of the 127,000 people living with Parkinson's in the UK. By listening to and understanding their needs and experiences we can better support and empower people with Parkinson's to feel more in control...

Robin Williams' Widow Pens Heartbreaking Essay About Actor's Final Days

The Huffington Post | Matt Bagwell | Posted 03.10.2016 | UK Entertainment

Robin Williams’ widow has opened up about her husband’s final months in a heartbreaking essay. Susan Schneider lifts the lid on the ‘Mrs. Doubtf...

Former Show Jumper With Parkinson's Disease Granted Wish To Ride A Horse One Final Time

The Huffington Post | Rachel Moss | Posted 28.09.2016 | UK Lifestyle

Nelly Jacobs devoted much of her life to horses, but when she was diagnosed with Parkinson’s disease in her 50s, she was forced to stop riding. But ...

Coming Out With Parkinson's

Paula Scurfield | Posted 22.04.2017 | UK Lifestyle
Paula Scurfield

I took a very different approach to my dad and told people straight away when I was diagnosed. I have met many people since within the Parkinson's community who have delayed telling people for years but I don't understand it, there shouldn't be a stigma attached to having Parkinson's.

Many Parkinson's Patients Hiding Symptoms From Loved Ones

The Huffington Post | Natasha Hinde | Posted 18.04.2016 | UK Lifestyle

Almost two fifths of people with Parkinson's disease have felt the need to hide their symptoms or lie about having the condition, new research has rev...

People With Parkinson's Forced to Hide or Lie About Their Condition

Steve Ford | Posted 18.04.2017 | UK Lifestyle
Steve Ford

Over a third of people we surveyed experienced negative emotions in the year following their diagnosis, with the news having the hardest emotional impact on younger people. Many people reported feeling 'like their world had ended' 'they were grieving' or 'like they didn't know who to turn to'.

Nike Surprised Michael J. Fox With World's First 'Back To The Future' Self-Tying Trainers

The Huffington Post UK | Chris York | Posted 22.10.2015 | UK Tech

Michael J. Fox tried on the first ever pair of self-tying trainers in honour of Back to the Future day on Wednesday. The Nike Mags are inspired by ...

Hostility and Rudeness Blight Lives of 69,000 With Parkinson's

Steve Ford | Posted 19.06.2015 | UK
Steve Ford

People with Parkinson's have told us they've been stared at, had their symptoms mistaken for drunkenness, and even been laughed at in public because of their symptoms.

Parkinson's Awareness Day

Elaine Benton | Posted 08.06.2015 | UK Lifestyle
Elaine Benton

As absurd as it sounds, I could swear the older I get, the faster time speeds up! It's hard to imagine a whole year has passed and here we are once again, marking the 11 April as Parkinson's Awareness Day. A very appropriate date, i.e. the birthday of the infamous Dr James Parkinson, who first recorded the disease in 1817.

When Hospital Isn't the Safest Place to Be

Steve Ford | Posted 05.05.2015 | UK
Steve Ford

From January 2013 to December 2014 people with Parkinson's were subject to over 3,300 avoidable medication errors in hospitals across England. Almost 600 of these caused discernible harm including increased pain, severe rigidity and hallucinations.

A breath Test to Diagnose Parkinson's - Hard Science or Hot Air?

Steve Ford | Posted 12.04.2015 | UK
Steve Ford

We've been struggling for decades to find the answer - a definitive diagnostic test for Parkinson's. So far brain scans, blood tests and urine samples haven't come up with the goods. As a result there's often doubt, and even error, in Parkinson's diagnosis, particularly in the early stages.

People With Parkinson's Confused and Abandoned After Diagnosis

Steve Ford | Posted 04.04.2015 | UK Lifestyle
Steve Ford

This chronic lack of information and support is leaving people with Parkinson's feeling discarded and deserted at the toughest time of their lives. This is simply unacceptable.

When to Stop Driving

Elaine Benton | Posted 17.11.2014 | UK Lifestyle
Elaine Benton

I was diagnosed with Parkinson's at age 44, and at the beginning as symptoms started to appear and make themselves known to me, I paid close attention to my driving. The last thing I wanted was to be driving when I shouldn't. I had no intention of putting myself in danger, or worse still causing an accident and hurting someone I love or any innocent victim.

No Sense of Direction

Elaine Benton | Posted 15.09.2014 | UK Lifestyle
Elaine Benton

I will admit many things, one of which is my inability to follow a map, and poor sense of direction. Well, if I were being totally honest, I'd confess, I have no sense of direction whatsoever. My husband will quite happily back me up on this point for I have demonstrated on many occasion, much to my shame and his amusement, getting lost even in familiar surroundings.

Caregivers of Rare Diseases

Elaine Benton | Posted 04.08.2014 | UK Lifestyle
Elaine Benton

Being a caregiver of a loved one is far from an easy task, and is probably the last thing anyone thinks of when young and falling in love. Suddenly the life you had mapped out is abruptly thrown off route and extensive changes have to be made on an emotional and physical level.

Billy Connolly Is Not A Hobbit Fan

The Huffington Post UK | Posted 10.03.2014 | UK Comedy

National treasure (TM) Billy Connolly may be playing a dwarf in the next Hobbit movie - but he's not a fan of Tolkein's work, as he revealed on Conan ...

Rare Disease Awareness Day 2014

Elaine Benton | Posted 28.04.2014 | UK Lifestyle
Elaine Benton

The last day of February each year has been designated as Rare Disease Awareness Day, a world wide effort to bring greater awareness to the general public, governments, health policy makers, along with research and development.

Gene Therapy Treatment For Parkinson's Shows Promise, Researchers Say

PA/The Huffington Post UK | Posted 23.01.2014 | UK Lifestyle

A gene therapy for Parkinson's disease has produced promising results in its first patient trial, say researchers. The ProSavin treatment uses an i...

Life Is Not Black & White

Elaine Benton | Posted 03.03.2014 | UK Lifestyle
Elaine Benton

Born with Gaucher disease and battling for the last eight years with Parkinson's, I became an advocate for both diseases. It may sound odd, but my ill health has taken me on a tremendous journey, one which I would never have dreamt of a few years back.