Today, we're saying that we won't wait any longer to deliver better treatments and a cure, faster. That's why Parkinson's UK is spearheading, with the expertise of the research community and the support of people with Parkinson's, the revolution needed to take promising treatments out of the lab and into doctors' surgeries.
In fact, health technology is already stepping up to the mark in many areas, by improving our ability to monitor, measure and record symptoms, medication compliance and patient outcomes. Combined with the power of advanced analytics and patient-friendly interfaces, these technologies promise major benefits.
As absurd as it sounds, I could swear the older I get, the faster time speeds up! It's hard to imagine a whole year has passed and here we are once again, marking the 11 April as Parkinson's Awareness Day. A very appropriate date, i.e. the birthday of the infamous Dr James Parkinson, who first recorded the disease in 1817.
I was diagnosed with Parkinson's at age 44, and at the beginning as symptoms started to appear and make themselves known to me, I paid close attention to my driving. The last thing I wanted was to be driving when I shouldn't. I had no intention of putting myself in danger, or worse still causing an accident and hurting someone I love or any innocent victim.
I will admit many things, one of which is my inability to follow a map, and poor sense of direction. Well, if I were being totally honest, I'd confess, I have no sense of direction whatsoever. My husband will quite happily back me up on this point for I have demonstrated on many occasion, much to my shame and his amusement, getting lost even in familiar surroundings.
How many times have you been asked by a doctor; "On a scale of 1 - 10, how bad is the pain?" Unfortunately I've been asked this question too many times to count. I realise a doctor needs some indication, a clue as to what he/she is dealing with, but I wonder how helpful this unreliable approach really is.