Plagiocephaly Awareness Day: Mum Urges Parents To Be Aware Of 'Flat Head Syndrome' Symptoms

'I had this feeling in my heart something was wrong.'

A mother whose son was diagnosed with plagiocephaly - also known as "flat head syndrome" - has opened up about the little-known condition in a bid to raise awareness.

Aileen Sergent, 35, said when her son Loki was just a few weeks old, she noticed the size and shape of his head looked different.

But as a first-time mum, she said many health professionals put her worries down to being "overprotective".

"It was gut instinct," Sergent told The Huffington Post UK. "I wasn't happy and had this feeling in my heart something was wrong.

"I wasn't going to stop until I found out."

Open Image Modal
-
Aileen Sergent and her son Loki during treatment

Plagiocephaly is when a baby develops a flattened head, usually as a result of them spending a lot of time lying on their back.

It is caused by pressure on the soft skull bones, which have not yet fused, and become moulded into a different shape.

The number of babies developing plagiocephaly is increasing - 13 years ago, just  5% of babies developed the condition, according to Great Ormond Street.

But now as as many as 50% of babies show symptoms, and of those who are diagnosed, 19% will suffer some degree of physical developmental delay.

Sergent said she had noticed Loki's head seemed flat at the back just a few days after he was born and it got worse as the weeks went on.

She'd never heard of plagiocephaly before, so wasn't aware what was causing it. 

Sergent said when she asked medical professionals and health visitors whether they thought something was wrong with Loki's head, no one mentioned the possibility of it being plagiocephaly. 

Open Image Modal
-

"My family could see where I was coming from," Sergent explained. "BUt maybe even they felt that I was going overboard a little bit, but I just knew something was wrong.

"When I went to the doctor he said: 'Stop looking at his bad points and concentrate on his good points'.

"I went for a second opinion but I was still getting the same story."

Sergent said the first time she considered the possibility of her son having plagiocephaly was after she began looking on Google for answers. 

She came across the symptoms of the condition online and got in touch with a private clinic in Leeds.

"They knew straight away," she said. "We went for an initial assessment and he was scanned that day.

"The results came back to say he was 'borderline severe' and was recommended to have a helmet straight away."

Loki was officially diagnosed with plagiocephaly when he was 16 weeks old.

The most common treatment for plagiocephaly is wearing a corrective helmet for a period of time. These specially-designed helmets help improve the shape of a baby's skull as they grow.

They apply pressure to "bulging" parts of the skull and relieve pressure from other parts, allowing growth in the flatter areas.

Treatment is started when the child's skull is still soft and the device is worn almost continuously for several months.

Such treatment is currently not available through the NHS and can cost upwards of £2,000, making it unobtainable to many parents.

Open Image Modal
-

Sergent paid for private treatment for Loki. His head was scanned and the images were sent off to America where his helmet was made.

Two weeks later, he went for his first fitting and had adjustments made to ensure it was comfortable.

Loki needed to wear his helmet was for 23 hours a day, but Sergent said they had to build up to this amount.

"The first day it was as little as an hour on, an hour off, and then two hours on, two hours off," she said.

"Within a week we were up to 23 hours. We would only take it off to clean the head and helmet, but Loki completely took it in his stride.

"He happily played and slept in it all the time."

The next 18 weeks weren't an easy ride, as Sergent and Loki went back and forth to the clinic to ensure the helmet was accommodating his head.

He would be re-scanned and the helmet would be adjusted. 

But in the final weeks of treatment the specialists reassured Sergent that it wouldn't be long before the helmet would be off. 

"It was amazing when Loki finally got the helmet off - we even miss it in some ways," Sergent said. "It was our protective barrier when he was crawling.

"I couldn't stop touching his head - he is absolutely fine now and it worked perfectly."

Sergent has since had a second child and she said she took steps to reduce the chance of him developing plagiocephaly. 

She now urges new parents to be aware these precautions. 

"Tummy time from birth is important," she explained.

"I even got a special mattress that was softer so it moulded more to the head.

"My advice would be to focus on repositioning the baby for the first six months, so they're not always laying on their back for long periods of time.

"With my second son I would make sure I was repositioning him in every way I could.

"I would carry him, keep him out of the car seat for a long time and make sure he had time on his tummy."

The preventative treatments recommended by the NHS include tummy time, varying the way baby is carried/handled, feeding on both sides, and strategically positioning mobiles and toys in their cots to change the direction of focus.

Sergent added: "If you haven't heard of it, you won't know what to look for but remember kids don't have to spend all their time laying down on their back." 

Babymoov is supporting World Plagiocephaly Awareness Day to highlight the little known condition that affects half of all babies under the age of one.

Celebrity Babies Born In 2016
December 2016: Joanna Page and James Thornton(01 of45)
Open Image Modal
Joanna page announced she gave birth to her third child on Tuesday 13 December, a boy called Noah. (credit:Stuart Wilson via Getty Images)
December 2016: Kimberley Walsh And Justin Scott(02 of45)
Open Image Modal
Walsh announced she had given birth to her second son on Wednesday 14 December. (credit:Karwai Tang via Getty Images)
December 2016: Mila Kunis and Ashton Kutcher(03 of45)
Open Image Modal
Mila Kunis gave birth to her second child with Ashton Kutcher. They are already parents to two-year-old Wyatt. (credit:Photo by Noam Galai (@noamgalai))
December: Dapper Laughs And Shelley Rae(04 of45)
Open Image Modal
Dapper Laughs (aka Daniel O’Reilly,) announced his girlfriend Shelley Rae had given birth on Sunday 4 December.
The couple named their daughter Neve O’Reilly.
(credit:InstagramDapper Laughs)
November 2016: Rob Kardashian and Blac Chyna(05 of45)
Open Image Modal
The couple welcomed their first child together on 10 November. They welcomed a baby girl named Dream. (credit:Raoul Gatchalian/STAR MAX/IPx)
September 2016: Ryan Reynolds and Blake Lively(06 of45)
Open Image Modal
Blake Lively gave birth to her second child in September 2016. The couple did not reveal the baby's name or sex. (credit:Evan Agostini/Invision/AP)
September 2016: Adam Levine and Behati Prinsloo(07 of45)
Open Image Modal
Behati gave birth to a baby girl named Dusty with her husband Adam Levine in September. (credit:Insatgram)
September 2016: Paddy' McGuinness and wife Christine(08 of45)
Open Image Modal
Paddy McGuinness' wife Christine has given birth to a baby girl. Felicity Rose McGuinness made her arrival into the world on Friday 9 September 2016, weighing 8lb 2oz. (credit:Mark Cuthbert via Getty Images)
September 2016: Jessie Ware(09 of45)
Open Image Modal
Jessie Ware gave birth to her first child - a baby girl - with her husband Sam Burrows on Monday 5 September. (credit:Jeff Spicer via Getty Images)
August 2016: Natalie Cassidy(10 of45)
Open Image Modal
Natalie Cassidy gave birth to her second daughter in August 2016. She uploaded a family photo on 29th August with her fiancé and five-year-old daughter Eliza. (credit:Barcroft Media via Getty Images)
August 2016: Megan Fox and Brian Austin Green(11 of45)
Open Image Modal
Megan Fox gave birth to her third son with husband Brian Austin Green on 4 August. She called him Journey River Green. (credit:Lionel Hahn/ABACA USA)
August 2016: Jools and Jamie Oliver(12 of45)
Open Image Modal
Jools Oliver gave birth to her fifth child in August 2016. (credit:Jonathan Short/Invision/AP)
August 2016: Luisa Zissman(13 of45)
Open Image Modal
Luisa Zissman gave birth to her second daughter on 2 August 2016. (credit:Mark Cuthbert via Getty Images)
August 2016: Ellie Kemper(14 of45)
Open Image Modal
Ellie Kemper gave birth to her first child with Michael Koman. (credit:Lucas Jackson / Reuters)
July 2016: Kristina Rihanoff and Ben Cohen(15 of45)
Open Image Modal
Kristina Rihanoff gave birth to a baby girl with boyfriend Ben Cohen. (credit:ASSOCIATED PRESS)
July 2016: Alanis Morissette(16 of45)
Open Image Modal
Alanis Morisette gave birth to her second child - Onyx Solace Morissette-Treadway with her husband, rapper Mario "Souleye" Treadway. (credit:Mike Coppola via Getty Images)
July 2016: Liv Tyler and David Gardner(17 of45)
Open Image Modal
Liv Tyler welcomed her second child in July 2016 with David Gardner - a daughter named Lula Rose. (credit:Ben Gabbe via Getty Images)
July 2016: Nicky Hilton and James Rothschild(18 of45)
Open Image Modal
Nicky Hilton Rothschild gave birth to her first child, Lily Grace Victoria Rothschild, on 8 July 2016. (credit:Jerritt Clark via Getty Images)
July 2016: Emily Blunt and John Krasinski(19 of45)
Open Image Modal
Emily Blunt and John Krasinski welcomed their second daughter together in July 2016. Krasinski announced the news on Twitter, writing: “What better way to celebrate the 4th… than to announce our 4th family member!!! 2 weeks ago we met our beautiful daughter Violet #Happy4th." (credit:Ron Galella via Getty Images)
June 2016: Dani Harmer(20 of45)
Open Image Modal
The 27-year-old actress welcomed her first child with her boyfriend Simon Brough. She called her daughter Avarie-Belle Betsy Brough. (credit:Dave M. Benett via Getty Images)
June 2016: Alex Fletcher(21 of45)
Open Image Modal
Alex Fletcher and her husband Neil Davies welcomed their son Hanson on 3 June, weighing in at 8lbs 9oz. (credit:Doug Peters/Doug Peters)
June 2016: Tina Barrett and Paul Cashmore(22 of45)
Open Image Modal
Tina Barrett announced she gave birth to a baby boy named Roman via Twitter on 20 June. (credit:David M. Benett via Getty Images)
June 2016: Eddie Redmayne and Hannah Bagshawe(23 of45)
Open Image Modal
The couple welcomed a baby girl named Iris on Wednesday 15 June. (credit:Paul Archuleta via Getty Images)
June 2016: Tess Holliday(24 of45)
Open Image Modal
Tess Holliday gave birth to her second son, Bowie Juniper on 6 June. (credit:Jason LaVeris via Getty Images)
June 2016: Ginnifer Goodwin and Josh Dallas(25 of45)
Open Image Modal
Ginnifer Goodwin gave birth to her second son with Josh Dallas. (credit:Paul Archuleta via Getty Images)
June 2016: Steve McFadden(26 of45)
Open Image Modal
The 57-year-old actor reportedly welcomed his fifth child with girlfriend Karen Cairns. (credit:Dave J Hogan via Getty Images)
May 2016: Ronnie Wood and Sally Wood(27 of45)
Open Image Modal
Sally Wood gave birth to twin girls on 30 May. Ronnie wood turned 69 two days after the girls were born. (credit:Dave J Hogan via Getty Images)
April 2016: Chrissy Teigen and John Legend(28 of45)
Open Image Modal
Chrissy Teigen announced the birth of her and John Legend's first child together on 17 April 2016. She gave birth to a baby girl named Luna. (credit:Eric Stringer via Getty Images)
April 2016: Kelly Clarkson(29 of45)
Open Image Modal
The 33-year-old announced she had given birth to her second child in April 2016. She is already mum to 22-month-old River. (credit:Rob Kim via Getty Images)
March 2016: James Van Der Beek And Wife Kimberly(30 of45)
Open Image Modal
James Van Der Beek and his wife Kimberly welcomed their fourth child, Emilia on 23 March 2016. The actor announced the news two days later on his social media accounts. (credit:Alberto E. Rodriguez via Getty Images)
March 2016: Suranne Jones(31 of45)
Open Image Modal
Suranne Jones gave birth to her first child in March 2016. The Doctor Foster actress and her husband Laurence Akers welcomed a baby boy. (credit:Karwai Tang via Getty Images)
March 2016: Gareth Bale and Emma Rhys-Jones(32 of45)
Open Image Modal
The Real Madrid footballer announced on Instagram that his partner Emma Rhys-Jones had given birth to their second daughter called Nava Valentina Bale. (credit:Karwai Tang via Getty Images)
March 2016: Ne-Yo And Crystal Renay Smith(33 of45)
Open Image Modal
Ne-Yo became a dad for the third time in March 2016 when his new wife, Crystal, gave birth to a baby boy. (credit:WireImage)
March 2016: Morena Baccarin and Ben McKenzie(34 of45)
Open Image Modal
The couple welcomed their first child together, a baby girl, on 2 March 2016. (credit:Evan Agostini/AP)
February 2016: Tom Fletcher and Giovanna Fletcher(35 of45)
Open Image Modal
Tom Fletcher's wife Giovanna gave birth to the couple's second son on 16 February. The couple named him Buddy Bob Fletcher. (credit:Instagram/TomFletcher)
February 2016: Tracey Crouch and Steve Ladner(36 of45)
Open Image Modal
Tracey Crouch gave birth to her first child with partner Steve Ladner on 18 February. The couple welcomed a baby boy named Freddie. (credit:Getty)
February 2016: Andy Murray and Kim Sears (37 of45)
Open Image Modal
Andy Murray's wife Kim Sears gave birth to the couple's first child together, reportedly on 7 February.
February 2016: Kirk Norcross and Holli Willis (38 of45)
Open Image Modal
Former TOWIE star Kirk Norcross and fiancée Holli Willis welcomed their first child together on 9 February. They welcomed a baby girl named Violett. (credit:Doug Peters/Doug Peters)
January 2016: Tyra Banks and Erik Asla - York Banks Asla(39 of45)
Open Image Modal
January 2016: Coleen and Wayne Rooney - Kit Joseph Rooney(40 of45)
Open Image Modal
Coleen gave birth to the couple's third son together on 24 January. They announced on Twitter they called him Kit Joseph Rooney.
January 2016: Harry and Izzy Judd - Lola Rose Emma Judd(41 of45)
Open Image Modal
McFly's singer Harry Judd's wife gave birth to the couple's first child together on 25 February. They welcomed a girl called Lola Rose Emma Judd.
January 2016: Louis Tomlinson and Briana Jungwirth - Freddie(42 of45)
Open Image Modal
Louis Tomlinson's former partner Briana Jungwirth gave birth to the couple's first child reportedly on 22 January.
January 2016: Howard Donald and Katie Halil - Bowie Taylan Donald(43 of45)
Open Image Modal
January 2016: Michael Bublé and Luisana Lopilato - Elias Bublé(44 of45)
Open Image Modal
Michael Bublé's wife Luisana Lopilato gave birth to the couple's second son together on 22 January.
January 2016: Cat Deeley and Patrick Kielty(45 of45)
Open Image Modal
Cat Deeley gave birth to her first child in the third week of January. The 39-year-old and her husband Patrick Kielty welcomed a son.

Before You Go