UK Autism

Defending Parent Bloggers

Kelly Kemp | Posted 17.01.2017 | UK Parents
Kelly Kemp

I write to keep those that care about us updated about Tink's progress (or not, as the case may be!). I write to share the funny things she does, the little things that amaze me or worry me. She's awesome and I want the world to know!

You're The Voice

Tina Medlock | Posted 16.01.2017 | UK Parents
Tina Medlock

His school notified me that there would be some more songs on the way and asked whether he would like to participate in Young Voices. For the benefit of those who have not heard of or experienced Young Voices, let me tell you a little about it.

Health: It's Time To Talk

Steve Scown | Posted 13.01.2017 | UK Lifestyle
Steve Scown

I'm 55 and I'm hoping I've many good years of life to come. But here's a thought - a man my age with learning disabilities is quite probably entering ...

Five Things Parents Of Autistic Kids Wish People Wouldn't Say!

Kelly Kemp | Posted 12.01.2017 | UK Parents
Kelly Kemp

Of course, the vast majority of people are well-meaning, but, unless they have personal experience, it can be difficult to know what to say, how to react to the news. There are several things that people will say to parents when they hear of their child's diagnosis - here are some examples and suggestions of things to try instead!

It's Not Just Paralympian Athletes Who Have To Pee Themselves

Laura Moore | Posted 11.01.2017 | UK Lifestyle
Laura Moore

I am one of the people who didn't find that news shocking at all. In fact, in an odd way I was pleased that it had happened to someone in the public eye, someone who was brave enough to come forward and tell the media about it so that finally our voices have a chance of being heard.

A Conflict Of Needs

Tina Medlock | Posted 05.01.2017 | UK Parents
Tina Medlock

My aspiration for Joseph may be way off track but I won't stop believing he can do it. The approach I adopt may be very different to other people's but whilst ever he disproves the doubters, I shall continue to push him as far as is reasonable.

Mum Praises Hairdresser For Not Giving Up On Son With Autism Who Hates Haircuts

The Huffington Post | Amy Packham | Posted 03.01.2017 | UK Parents

A mum has praised a hairdresser who didn’t “give up” on her son with autism who hates having his haircut. Jennifer McCafferty, from Charleston,...

Two-Year-Old Boy With Autism Revisits Snow White And Is Still In Love With Her

The Huffington Post | Poorna Bell | Posted 30.12.2016 | UK Parents

Last year, little Jack Jack Coley met Snow White and fell in love with her. He sat next to her, and put his head in her lap, which is a big deal for h...

The Reality Of Christmas

Tina Medlock | Posted 27.12.2016 | UK Parents
Tina Medlock

We all went downstairs together and guided Joseph towards his pile of presents. He glanced across and asked where the iPad was. I explained that there would be no iPad and encouraged him to open his presents.

Keeping My Promise To My Daughter By Helping Nonverbal Children Communicate Through Tech

Rob Laffan | Posted 23.12.2016 | UK Tech
Rob Laffan

tech for good Ultimately, TippyTalk's mission is to create platforms that encourage social communication independence for people living with nonverbal disorders. That independence is something that those of us without verbal disabilities take for granted, but nurturing it is critical to connect people with verbal disabilities to the world.

10-Year-Old With Autism And ADHD Sails Through 'Faultless' Performance Of 'Hallelujah'

The Huffington Post | Amy Packham | Posted 23.12.2016 | UK Parents

A 10-year-old girl with autism and ADHD sung an incredible rendition of Leonard Cohen’s ‘Hallelujah’, which has been heard by more than one mill...

Scientists May Have Discovered What Causes A Third Of All Autism Cases

The Huffington Post | Oscar Williams | Posted 16.12.2016 | UK Tech

The scarcity of a single protein in the brain could explain as many as a third of all cases of autism, according to a new study. Researchers in Canad...

Special Needs And The 'C' Word...

Michala Dominey | Posted 15.12.2016 | UK Parents
Michala Dominey

When your bundles of joy enter the world, most people have a wonderful vision of what parenthood will be like -- how you'll capture every moment on camera, fill out every section of the baby's year book and spend Christmases savouring every beautiful moment.

Acceptance

Laura Rutherford | Posted 09.12.2016 | UK Parents
Laura Rutherford

Now that Brody is nearly 5, I have finally got used to the fact that Global Development Delay (GDD) doesn't mean "may catch up" for us. It's forever. And because he is still primarily undiagnosed, despite an autism and epilepsy diagnosis (as well as a few others), GDD seems to be moving on to a new "catch all" term - learning disability.

Society Is Letting Autistic People Down

Norman Lamb | Posted 09.12.2016 | UK Politics
Norman Lamb

Transitions to adulthood are a vital area where much more needs to be done. There is very little information on whether children find it easier to work in certain professions (for example ones where routine and structure is required). Only by learning more about how autistic children do later in life can we make sure that their education is sufficiently tailored to maximise the chances of them entering the workplace successfully. Only a combination of more resources, more dedication, more support and more understanding will help ensure that every autistic child lives a life worth living.

Imperfectly Perfect

Tina Medlock | Posted 06.12.2016 | UK Parents
Tina Medlock

Some three and half years later when I had received an autism diagnosis for Joseph, I felt like my world was about to end and felt angry that once again, life wasn't as simple as it should be. It wasn't a case of me only just falling in love with my son and then falling out of love with him because he had a label.

Dad Over The Moon As Tommee Tippee Agree To Make 500 Sippy Cups For Son With Autism

The Huffington Post | Amy Packham | Posted 30.11.2016 | UK Parents

Tommee Tippee have announced they will be making 500 blue sippy cups for a 14-year-old boy with autism after a global search. The boy’s dad, Marc Ca...

A Christmas Story - One Of Hope

Tina Medlock | Posted 28.11.2016 | UK Lifestyle
Tina Medlock

I looked at him with great pride that he had the ability to sing after so many years of him not being able to communicate in any way and I saw happiness but he was oblivious to what was going on and what any of it meant. I reflected on that sound piece of advice I had previously been furnished with.

When Is It OK To Give Children Cannabis?

Mary Biles | Posted 28.11.2016 | UK Lifestyle
Mary Biles

Vera Twomey-Barry, mother of 6-year-old Ava who, who due to a rare genetic condition called Dravet Syndrome, suffers from as many as 20 epileptic seizures a day, decided to march the 300km to Dublin from her home in Cork.

A Letter To My Four Year Old After Becoming A Schoolgirl

Reneé Davis | Posted 24.11.2016 | UK Parents
Reneé Davis

Your brother and sister were scared of you last night, and hid. You wouldn't let me come closer than arms length for over an hour, but I know you desperately needed love. After the storm had passed you asked for a hug, and your beautiful smile returned.

Duchess Of Cambridge Embraced Teary Mum Whose Son With Autism Shared His Struggle

The Huffington Post | Amy Packham | Posted 23.11.2016 | UK Parents

The Duchess of Cambridge embraced a tearful mum who explained how her son who has autism had his life changed thanks to a mental health charity. The ...

When Awareness Makes Us Less Aware

Danielle Duggins | Posted 22.11.2016 | UK Parents
Danielle Duggins

My four-year-old son is screaming. The noise is relentless, high-pitched - almost painful. It reverberates in my chest and sets every nerve on edge. He has been screaming for half an hour. He can barely keep it up but there is no way for him to stop. It is visceral.

In The Beginning....

Tina Medlock | Posted 16.11.2016 | UK Parents
Tina Medlock

So now, here I go again and I suppose ultimately and selfishly I wanted to feel I have gained something from my ramblings but equally if I can help others in similar situations that would be fantastic. Some of what has already been written was done with tears and some with laughter and hopefully you will see the rollercoaster life that we lead in living with autism.

Can You Help This Dad Find The Blue Cup That Will 'Save' His Son?

The Huffington Post | Sophie Gallagher | Posted 16.11.2016 | UK Parents

A father’s emotional appeal to find a little blue cup for his son has been flooded with responses from concerned strangers. Marc Carter, from Devon,...

Brace Yoursens, Winter Is Coming

Tina Medlock | Posted 14.11.2016 | UK Parents
Tina Medlock

Every other child I know is getting up later because it's dark in the morning and despite the pitch black surroundings in his room, Joseph begins to get up earlier and earlier and my language starts to get worse and worse.