end of life care
British photographer Rankin and mutual insurer Royal London tackle the taboos surrounding death in new digital project 'Lost for Words', the exhibition is available to see for free online.
After graduating, Emma Clare began work as a home carer, helping those discharged by hospitals to feel comfortable as their illnesses took hold. In the role, Emma found a new perspective on life and death and also the problems caused by people not talking about how they wish the end to be for them. Now, she’s training to become an end-of-life doula, helping families enjoy their last moments with loved ones and preparing for death. For more, check out:
"I notice that on the coat tree there’s this beautiful robe. Kind of like a church robe except it’s white, and it has a round circle with a white cross on it and a hood."
Parents can teach us a lot of lessons. But often families don't talk enough about the difficult stuff in life. And there is one topic I wish my father had talked to me about before he died.
As my mum, my hospice nurse and I sat going through the plan and documenting my wishes, I suddenly blurted out that I was scared I'd die and be forgotten, that nothing would be different or better because of me and my life wouldn't have meant anything. It even surprised me, what I'd said, as I'd not consciously ever really thought about that. That sudden exclamation would change my life.
It is important that more people are aware about the benefits of hospice care. This will become ever more urgent in the future as our ageing population increases, with more people living for longer, often with complex health conditions. In addition, more children and young people with life-shortening conditions are living for longer due to advances in medical care.
Before making the decision to move Ross into a hospice, I was caring for him at home and feeling pretty useless. Being able to allow Ross to be given the care he deserves has allowed me to have some much needed quality time and be free to be his wife, not his carer.
When doctors argue against assisted dying they are ignoring evidence that shows that greater patient choice is key to improving
Slowly, painfully slowly, the good days were fewer and fewer, and our visits mainly consisted of us trying to make conversation with someone who barely knew we were there. My grandma would dutifully feed him biscuits when we visited. A woman in the corner of the day room, with white hair that stood on end, screamed periodically like a crowing rooster. The nurses seemed kind.
This week saw the launch of new research showing stark variation in palliative care provision across different services and