Parkinsons Disease

You're Never Fully Dressed Without a Smile

Elaine Benton | Posted 09.07.2015 | UK Lifestyle
Elaine Benton

Although I'm highly organised and like being prepared for any eventuality, I must confess of late, living with Gaucher and Parkinson's, not to mention the new four legged addition to our family, it's a job staying on top of things.

Travelling With Gaucher and Parkinson's

Elaine Benton | Posted 25.06.2015 | UK Lifestyle
Elaine Benton

My husband has become highly adept in pushing me in my wheelchair whilst manoeuvring a large case on wheels at the same time - impressively even up and down steep inclines. This requires not only strength but the ability to steer avoiding any oncoming passengers and obstacles.

A Parkinson's Dinner Party

Elaine Benton | Posted 18.06.2015 | UK Lifestyle
Elaine Benton

Having Parkinson's and making a dinner party, requires military style organisation as many things have to be thought of. I try to choose a menu where most of the dishes can be prepared in advance, sticking to simple delicious fail-proof recipes I've made before which require little work and few ingredients.

Life Is Looking Rosie!

Elaine Benton | Posted 11.06.2015 | UK Lifestyle
Elaine Benton

We have our work cut out for us working together with a professional trainer, and the next few months are not going to be easy, but in the long term we will end up with a well-trained companion/assistance dog who will hopefully enrich our lives, give me better quality of life and help me get through each day.

Does This Game Of Thrones Star Realise What He's Let Himself In For?

The Huffington Post UK | Caroline Frost | Posted 05.06.2015 | UK Entertainment

'Game of Thrones' star Enzo Cilenti is preparing to take on two almighty challenges in the coming weeks… on screen, trading wits, and punches, with ...

Who Turned Up the Heat?

Elaine Benton | Posted 04.06.2015 | UK Lifestyle
Elaine Benton

Who would have thought it possible to turn into a human volcano? I seem to defy the laws of nature; Mount Vesuvius eat your heart out! I have become a human heater, and whilst my poor husband who is nightly tormented by my malfunctioning internal thermostat, he kindly never complains.

Who Becomes a Caregiver?

Elaine Benton | Posted 29.05.2015 | UK Lifestyle
Elaine Benton

My mother was diagnosed with vascular dementia and I was suddenly cast into the role of caregiver. The deterioration was far more advanced than I had first imagined and I witnessed this cruel disease as it left destruction in its wake.

Caring for the Carer

Elaine Benton | Posted 21.05.2015 | UK Lifestyle
Elaine Benton

As tough as it is for a patient to receive and come to terms with a new diagnosis, it is equally traumatic on the spouse/partner, who without any prior warning or consultation, is unceremoniously thrown into the role of caregiver. Many pick up this mantle without hesitation, out of loyalty, devotion and love, take on this arduous task.

"You Only Die Once"

Steve Ford | Posted 19.05.2015 | UK
Steve Ford

The majority of people with Parkinson's would prefer to die at home but research suggests they are more likely to die in hospital. That's why at Parkinson's UK we are calling for more work to be done to help people communicate their wishes about their death in the early stages of the condition.

Bottoms Up!

Elaine Benton | Posted 13.05.2015 | UK Lifestyle
Elaine Benton

I confess, at a loss what to do, throwing caution to the wind, I took a shot of vodka, which as you've probably guessed, did not get rid of the Parkinson symptoms. It did however relax me to a degree thereby making the situation a little more bearable with no adverse effect.

I See You!

Elaine Benton | Posted 07.05.2015 | UK Lifestyle
Elaine Benton

The things people do when they assume no one is watching can be heart-warming, amusing, but occasionally just down right astonishing. I've often wondered what makes some men feel they can't be seen in the car.

A Friend Till the End

Elaine Benton | Posted 29.06.2015 | UK Lifestyle
Elaine Benton

Having a much-loved pet put down, is one of life's unpleasant responsibilities when owning a dog. Saving an animal from unnecessary suffering, when nothing else can be done, we sometimes have to make the difficult decision, knowing it is the kind and humane thing to do.

Hostility and Rudeness Blight Lives of 69,000 With Parkinson's

Steve Ford | Posted 19.06.2015 | UK
Steve Ford

People with Parkinson's have told us they've been stared at, had their symptoms mistaken for drunkenness, and even been laughed at in public because of their symptoms.

Frozen

Elaine Benton | Posted 15.06.2015 | UK Lifestyle
Elaine Benton

As I reached the frozen foods section, Parkinson's decided to unexpectedly throw me a curve ball, and I suddenly came to a grinding halt and froze. Rather appropriately, or ironic - depending on how you look at it, I was rooted to the spot next to the frozen vegetables.

Parkinson's Awareness Day

Elaine Benton | Posted 08.06.2015 | UK Lifestyle
Elaine Benton

As absurd as it sounds, I could swear the older I get, the faster time speeds up! It's hard to imagine a whole year has passed and here we are once again, marking the 11 April as Parkinson's Awareness Day. A very appropriate date, i.e. the birthday of the infamous Dr James Parkinson, who first recorded the disease in 1817.

Home is Best

Elaine Benton | Posted 01.06.2015 | UK Lifestyle
Elaine Benton

I've heard time and again about fellow Parkinson's sufferers experiencing devastating consequences from being hospitalised. From personal experience, I understand the severity and possible ramifications all too well after being hospitalised some months ago. Hospitalisation is something I try to avoid at all costs, but occasionally there is no choice.

Was It Something I Said?

Elaine Benton | Posted 27.05.2015 | UK Lifestyle
Elaine Benton

When first diagnosed, there is a flurry of shock and interest from those you know, but slowly as they realise this is a long term disease requiring dedication, their sympathy wanes. Friends, and bizarrely, some family too, have mysteriously vanished into thin air.

Presenting Gaucher and Parkinson's

Elaine Benton | Posted 11.05.2015 | UK Lifestyle
Elaine Benton

The DNA lottery has dealt me the booby prize of receiving two diseases, but ill health doesn't stop me living life to the best of my ability. "The show must go on", as they would say in the theatre.

Apple Just Turned The iPhone Into A Medical 'Tricorder'

The Huffington Post UK | Thomas Tamblyn | Posted 10.03.2015 | UK Tech

Apple has unveiled ResearchKit, a program that allows researchers to turn your iPhone 6 into a powerful medical analytics tool. Apps built through ...

Silent Heroes

Elaine Benton | Posted 13.04.2015 | UK Lifestyle
Elaine Benton

Keeping up appearances is an important coping mechanism for many living with Parkinson's, who fully understand that were they to drop this necessary façade of sorts, the distressing picture would likely send family and friends running in the opposite direction.

A breath Test to Diagnose Parkinson's - Hard Science or Hot Air?

Steve Ford | Posted 12.04.2015 | UK
Steve Ford

We've been struggling for decades to find the answer - a definitive diagnostic test for Parkinson's. So far brain scans, blood tests and urine samples haven't come up with the goods. As a result there's often doubt, and even error, in Parkinson's diagnosis, particularly in the early stages.

Attention Parkinson Toe Curlers!

Elaine Benton | Posted 06.04.2015 | UK Lifestyle
Elaine Benton

They say "a problem shared is a problem halved". Quite frankly, I was getting desperate. After last week, appealing to fellow Parkinson's sufferers regarding a particular pesky problem many are afflicted with, (the dreaded painful toe curling symptom) I received many interesting and inventive suggestions.

People With Parkinson's Confused and Abandoned After Diagnosis

Steve Ford | Posted 04.04.2015 | UK Lifestyle
Steve Ford

This chronic lack of information and support is leaving people with Parkinson's feeling discarded and deserted at the toughest time of their lives. This is simply unacceptable.

The Pains of Parkinson's

Elaine Benton | Posted 30.03.2015 | UK Lifestyle
Elaine Benton

There appears little to ease the pain a Parkinson's patient experiences first thing in the morning. The stiffness and rigidity that set in during the night, leave one feeling like a stiff board. Just rolling over or getting out of bed becomes extremely difficult and takes tremendous effort.

Turn Me "On" Please!

Elaine Benton | Posted 16.03.2015 | UK Lifestyle
Elaine Benton

Being newly diagnosed, I was far from suffering what would become in future years, one of the most annoying debilitating symptoms of Parkinson's. At the time, unfamiliar with the term 'on' and 'off' I asked for clarification of this phrase.