Parkinsons Disease

Was It Something I Said?

Elaine Benton | Posted 27.03.2015 | UK Lifestyle
Elaine Benton

When first diagnosed, there is a flurry of shock and interest from those you know, but slowly as they realise this is a long term disease requiring dedication, their sympathy wanes. Friends, and bizarrely, some family too, have mysteriously vanished into thin air.

Presenting Gaucher and Parkinson's

Elaine Benton | Posted 12.03.2015 | UK Lifestyle
Elaine Benton

The DNA lottery has dealt me the booby prize of receiving two diseases, but ill health doesn't stop me living life to the best of my ability. "The show must go on", as they would say in the theatre.

Apple Just Turned The iPhone Into A Medical 'Tricorder'

The Huffington Post UK | Thomas Tamblyn | Posted 10.03.2015 | UK Tech

Apple has unveiled ResearchKit, a program that allows researchers to turn your iPhone 6 into a powerful medical analytics tool. Apps built through ...

Silent Heroes

Elaine Benton | Posted 12.02.2015 | UK Lifestyle
Elaine Benton

Keeping up appearances is an important coping mechanism for many living with Parkinson's, who fully understand that were they to drop this necessary façade of sorts, the distressing picture would likely send family and friends running in the opposite direction.

A breath Test to Diagnose Parkinson's - Hard Science or Hot Air?

Steve Ford | Posted 11.02.2015 | UK
Steve Ford

We've been struggling for decades to find the answer - a definitive diagnostic test for Parkinson's. So far brain scans, blood tests and urine samples haven't come up with the goods. As a result there's often doubt, and even error, in Parkinson's diagnosis, particularly in the early stages.

Attention Parkinson Toe Curlers!

Elaine Benton | Posted 05.02.2015 | UK Lifestyle
Elaine Benton

They say "a problem shared is a problem halved". Quite frankly, I was getting desperate. After last week, appealing to fellow Parkinson's sufferers regarding a particular pesky problem many are afflicted with, (the dreaded painful toe curling symptom) I received many interesting and inventive suggestions.

People With Parkinson's Confused and Abandoned After Diagnosis

Steve Ford | Posted 03.02.2015 | UK Lifestyle
Steve Ford

This chronic lack of information and support is leaving people with Parkinson's feeling discarded and deserted at the toughest time of their lives. This is simply unacceptable.

The Pains of Parkinson's

Elaine Benton | Posted 30.03.2015 | UK Lifestyle
Elaine Benton

There appears little to ease the pain a Parkinson's patient experiences first thing in the morning. The stiffness and rigidity that set in during the night, leave one feeling like a stiff board. Just rolling over or getting out of bed becomes extremely difficult and takes tremendous effort.

Turn Me "On" Please!

Elaine Benton | Posted 16.03.2015 | UK Lifestyle
Elaine Benton

Being newly diagnosed, I was far from suffering what would become in future years, one of the most annoying debilitating symptoms of Parkinson's. At the time, unfamiliar with the term 'on' and 'off' I asked for clarification of this phrase.

A Wolf In Sheep's Clothing

Elaine Benton | Posted 09.03.2015 | UK Lifestyle
Elaine Benton

As a person living with Parkinson's, just like millions of other fellow sufferers, when first diagnosed, I took a crash course in scouring the Internet to educate myself. Patients generally understand and know full well the harsh reality that awaits them.

It's a No Win Situation

Elaine Benton | Posted 04.03.2015 | UK Lifestyle
Elaine Benton

It's like riding some frenzied merry-go-round, but there's nothing remotely "merry" about living with Parkinson's. Most of the time I'm bursting with fighting spirt and determination not to let Parkinson's get the upper hand...

There's No Room at the Inn!

Elaine Benton | Posted 21.02.2015 | UK Lifestyle
Elaine Benton

As adults we often view loneliness as a sign of failure, and a successful person is surrounded by a multitude of friends. In reality, this is not the case, for generally one has only a small handful of what can be considered loyal good friends, the others are merely acquaintances.

Fighting For Your Rights

Elaine Benton | Posted 16.02.2015 | UK Lifestyle
Elaine Benton

Different countries around the world with diverse health schemes, adhere to set rules and regulations. Learning how the system works where you live, and finding out what you're entitled to, are just the first steps, in what feels like a voyage into uncharted waters.

Thank You Michael McIntyre

Elaine Benton | Posted 09.02.2015 | UK Lifestyle
Elaine Benton

Living with a long term illness can be awfully hard sometimes, and we all need a good laugh now and then. Comedy takes your mind off a bad situation, even if just for a short time, which one could say is the true form of "comic relief".

The Night Before

Elaine Benton | Posted 02.02.2015 | UK Lifestyle
Elaine Benton

The night before surgery is always strange, sleeping in a hospital bed waiting to get tomorrow over and done with, so the recovery process can begin. Thoughts of home and getting back to some form of normality fill my sleepy head.

The Magic of Chicken Soup

Elaine Benton | Posted 26.01.2015 | UK Lifestyle
Elaine Benton

Entering the winter months, night closes in early, as darkness envelops us with a chill in the air. There is nothing more welcoming than arriving home, greeted by the wonderful aroma of a steaming pot of soup on the stove.

Maintaining Friendships

Elaine Benton | Posted 19.01.2015 | UK Lifestyle
Elaine Benton

Generally people don't want to hang around anyone chronically ill, and I can't say I blame them. I do understand, for someone in a poor state of health has limitations when it comes to socializing, which admittedly causes difficulty in maintaining friendships. Once diagnosed with a degenerative disease, life is never quite the same again.

Robin Williams: What Is Lewy Body Dementia?

The Huffington Post UK | Rachel Moss | Posted 13.11.2014 | UK Lifestyle

Robin Williams may have been suffering from hallucinations when he committed suicide in August of this year. TMZ claim to have obtained documents s...

Never Give Up Hope

Elaine Benton | Posted 05.01.2015 | UK Lifestyle
Elaine Benton

Are you familiar with the 'missing sock' syndrome, which continues to be baffle me? I'm far from alone experiencing this strange phenomena, as it probably occurs in most households around the world. For those of you who haven't a clue what I'm talking about and are puzzled, shaking your heads; let me explain.

Brain Fog - Proof in the Pudding

Sonja Lewis | Posted 20.12.2014 | UK Lifestyle
Sonja Lewis

It had never occurred to me that I could affect my brain through food or drink until I suffered really serious brain fog, a term that has been used rather loosely to define that muddled feeling, which causes us to act out of character, sometimes rather zanily, forgetting little things (the keys) and sometimes big things (where the car is parked).

Not Tonight Josephine

Elaine Benton | Posted 15.12.2014 | UK Lifestyle
Elaine Benton

I am not a doctor, but merely a patient with a lot of experience and a desire to share information offering support to others in similar circumstances. I write about every aspect of living with an on-going long term illness. No subject is taboo or off limits.

A Reply to the BUAV

Kirk Leech | Posted 18.12.2014 | UK
Kirk Leech

The purpose of this undercover activity is not to improve the health and welfare of laboratory animals but to send exaggerated shock messages to the public through national news media implying that scientists cannot be trusted with the care of animals with the ultimate aim of ending all research using animals.

What Matters Most

Elaine Benton | Posted 25.11.2014 | UK Lifestyle
Elaine Benton

Most of us living with Parkinson's disease are on a cocktail of pills we ritually take each day. We can try to help maintain the dopamine levels to some degree by eating the right foods. A well balanced diet alone cannot of course replace Parkinson's medications, but ensures they work at an optimal level.

Don't Wait Till It's Too Late

Elaine Benton | Posted 10.11.2014 | UK Lifestyle
Elaine Benton

Most people don't think twice about having pension schemes, life insurance, money tucked away in a savings plan for a rainy day, as this is considered being smart and planning ahead. So why is there a psychological block and what is the problem in tackling one's long-term living conditions in the same manner?

Gaucher & Parkinson, Take A Hike!

Elaine Benton | Posted 03.11.2014 | UK Lifestyle
Elaine Benton

Growing up with Gaucher disease, I wasn't allowed to participate in sports at school and often felt left out, but knew my bones were weak and fragile. I frequently had bouts of unexplained chronic bone pain, so didn't need much convincing to steer clear of the sports hall and the highly spirited netball team.