Mum Blogger who blogs about Epilepsy, Tourettes, cocks and ducks. Hoping to inspire you and make you laugh.
I am a 37 year old Mum of two who blogs about life with Epilepsy, Tourettes, cocks and ducks. I always look on the bright side of life despite my iffy brain. If there is a positive I will find it and make a joke about it. Hoping to inspire you and make you laugh.
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My kids have devised several ways to help me. James walks behind me with a duvet so he can catch me when I fall. Emily holds on to me and tells me to "SIT DOWN MUMMY" when she sees me get up as only a bossy five year old can. James can push me short distances in the wheelchair and quite enjoys having that control over me! He threatens to push me down hills on a regular basis.
Living with epilepsy is really hard and it would be so much easier if people understood the condition more. As I don't have the typical tonic clonic seizures people find it hard to class it as epilepsy. I get asked all the time if I just fell but it was actually a seizure. I also have myoclonic seizures which are jerks and can be very subtle.
Six and a half years ago my life was changed forever. My baby son Charlie was diagnosed with pneumococcal meningitis. It turned our world upside down when he died six days after his diagnosis. As we lay with our baby while he took his last breath we couldn't believe our cheeky little 15 week old boy had been so cruelly taken from us
It's been a rather eventful couple of weeks here. I posted on Facebook that I made it to school without my wheelchair one day. Oh how the universe laughed at me. It's all been downhill ever since. My seizures have been terrible the past two weeks.
I was diagnosed with epilepsy almost a year ago now and one of the toughest challenges for me has been looking after my two children, James (9) and Emily (5). I have atonic seizures, which means I fall several times a day
I want to be an every day person not training for the 2020 Paralympics just because I'm in a wheelchair. I can barely move my own chair let alone race in one! People expect me to be able to do all sorts of things if I just think positively but sadly it just doesn't work like that.
We went out for lunch on Sunday as an early Mother's Day treat and I almost face planted my lunch. A coat strategically placed on the table meant I could have a nap while eating. There's no choosing when I sleep, it's when my body allows me to stay awake. My social skills aren't great though!
Last year I spent a lovely couple of weeks in France with friends. Thankfully friends who understand that I shout at them and their children. My current shout-ism is "c**k", which we've managed to pretend is "cake", "cot" and "cod" amongst many others.
So the purpose of this blog is to see the funny side of life. Life may be very difficult right now but I still have my sense of humour. I can only compare my life at the moment to one of a slug. I spend most of my time horizontal and moving slowly from room to room. The difference is I have arms so while I may feel as useless as a slug right now I still have the ability to type.
17/03/2017 17:09 GMT
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