Epilepsy is one of the most common neurological conditions, affecting one in every 100 people in the UK. Epileptic seizures occur when there is a sudden surge in electrical activity inside the brain, and can result in a range of different symptoms. The cause of the often lifelong condition is unknown in most cases.
"It’s a disabling condition that can have severe impacts on the person living with it at all times."
I have a very complex type of epilepsy – it affects my cognition but I’ve also had seizures. It’s been a long road, but over
Despite all of the risks associated with epilepsy, SUDEP has never been discussed with us by any of Brody's paediatricians. I found out what it was in a leaflet that was handed to us when he was diagnosed. It was briefly mentioned on a page, almost as though it was an afterthought.
The response to the article was phenomenal. In fact, I'm still trying to respond to all of the comments! I never expected such a huge response, I just wanted to give a voice to Epilepsy. The original article I discussed in that post ruffled quite a few feathers within the disabled community, incredibly so...
Living with epilepsy is really hard and it would be so much easier if people understood the condition more. As I don't have the typical tonic clonic seizures people find it hard to class it as epilepsy. I get asked all the time if I just fell but it was actually a seizure. I also have myoclonic seizures which are jerks and can be very subtle.
It's been a rather eventful couple of weeks here. I posted on Facebook that I made it to school without my wheelchair one day. Oh how the universe laughed at me. It's all been downhill ever since. My seizures have been terrible the past two weeks.
So the purpose of this blog is to see the funny side of life. Life may be very difficult right now but I still have my sense of humour. I can only compare my life at the moment to one of a slug. I spend most of my time horizontal and moving slowly from room to room. The difference is I have arms so while I may feel as useless as a slug right now I still have the ability to type.
A mum was touched when a complete stranger helped her daughter when she had a seizure in public. Angi Burk Pietzak explained