Alongside daily experiencing the debilitating symptoms of the condition, such as muscle pain, intense fatigue and cognitive impairments, those who suffer with ME also have to fight even to have it recognised. Here are four of the most common issues in the diagnosis, and treatment, of this life altering condition.
Two years on from my original idea and I have now launched my business. I have one style of handbag in four different colours, waiting to enter someones life of memories and chapters. Though the basis of my business is about the design of my products, I aim to encourage other businesses to support our treasured craftspeople of the country.
Imagine what it would feel like waking up every single day feeling like you've had no sleep at all. Not being able to make plans because you're worried that you may be too tired to even talk when it comes to the occasion. Laying in bed, unable to move, your body aching, but adrenaline telling you to get out and enjoy the day when you barely have enough energy to make a cup to tea.
While my sense of lack of satisfaction is still very much there, and I find it hard to be proud of myself for going out or 'doing' something, I'm trying to take things one step at a time and realise that I'm working my arse off, and that's worth celebrating. And setting myself small, achievable challenges is definitely one way of helping me manage that.