They are going to be feeling frustrated, confused and completely overwhelmed sometimes if not most of the time so it is important that you know some hurtful things that they say to you, they do not mean so don't take it too personally as it is just the illness talking and they will most likely apologise sincerely for it sometime after it has been said.
Gradually as I began to get better, you would read aloud longer passages and poems to me as you had done when I was a child. You had always kept a commonplace book of snippets of poetry, prayer and anecdotes that had particularly struck you, entitled 'Consolations'. I devoured the collection as if it were ice-cold water offered to a parched traveller.
Making a teeny-tiny human is the greatest thing your brother/sister ever did. They didn't do it for you, obviously. But sometimes, in a perfect moment with your niece/nephew on your lap, it feels like maybe they kind-of did.When my nephew, Charlie, puts his little hand in mine, the whole world makes sense. His existence is joy.
They don't tell you about the friends she's had for years who gradually stop coming to visit because they 'hate seeing her like that'. I'm pretty sure she hates being 'like that' too, but she could really do with a friend. They'll all be at her funeral though, because that's what friends are for, isn't it?
I have secondary infertility, in other words I had fertility issues after my first child was born. She is now six. After five and a half years of numerous procedures, operations, four rounds of IVF, a miscarriage and ending up with a fairy godmother surrogate, I got my happy ending, my complete family.
Dad's world was simpler than mine. Those he considered cowards were bullies and wife beaters. His idiots were layabouts, the intentionally uneducated and the spineless. My cowards are racists and homophobes. My idiots are the intolerant and the close-minded. People too scared to even try and understand anything that makes them look at their own lives.
Everyone picks up bad habits in life as well as driving, it's inevitable, but when you have children it's important to make sure you're not making glaring mistakes on a regular basis. I suppose that what many people need to realise is that if for instance your child grows up watching you on your phone in the car then they'll believe that it is safe behaviour.
I notice a difference in him immediately. His blue eyes are less focused, and he looks confused when he first sees me. As if he's thinking "I know that girl, but I just can't place her". His soft, wrinkled hands are shaky when he grasps mine in his, as I help him up from his chair. His smile is wide, but uncertain.
But if people aren't stocking up for the future, then come a crisis or emergency, many will come unstuck. If you have to make an unexpected journey or have a major illness or fall or face sudden unexpected bills for example, then a lack of supplies or petrol could be disastrous. 'Running on empty' is fine until that moment hits.
None of this will come as any great surprise. Following on from the scandals of Mid-Staffs, Morecambe Bay, Winterbourne View and others, the public are now largely conditioned to hearing about problems in health and social care services. There arguably remain more good news stories than bad ones, but of course the gravity of bad news travels far further.
Over recent years we've seen a move away from purchasing music to having access to an always-on supply of all our favourite tracks. Ten years ago we would have bought a CD and shared it between us. Up until now, digital and streamed music has been aimed at the individual and it has been difficult to share it, even with those under the same roof.
The expression is often used to express regret or in a context of celebration of the deceased, however, it carries ulterior implications, even if they are unintended by the user. Describing people to have 'lost' to cancer suggests that they could have done something differently and the outcome could be changed.
If there was a parenting rulebook, I would unashamedly campaign for this to be in the top 5; because if it offends some parent, somewhere, to be challenged on this point, I'd suggest they put their reproductive organs in some blending device and feed them to the family dog...because they shouldn't use them for anything else.
When it comes to Down's syndrome, the most common genetic disorder effecting one in every thousand babies in the UK, we usually hear the stories through the parents' perspective. To them, it is nothing short of a "near-death experience": once it happens, you have a complete different outlook on life, everything you think you know changes and you have to learn how to live and love your new circumstances but in the end, you wouldn't have it any other way...