Motor Neurone Disease

What Is Motor Neurone Disease? Diagnosis, Symptoms And Prognosis

The Huffington Post | Brogan Driscoll | Posted 05.10.2017 | UK Lifestyle

Motor Neurone Disease (MND) is a rare disease affecting two in every 100,000 people in the UK each year. At any one time there are around 5,000 people...

Supporting Choice At The End Of Life

Fran Springfield | Posted 19.07.2017 | UK
Fran Springfield

This is not about the beginning of euthanasia for disabled people. This is not the start of a slippery slope. This is not about coercing disabled people to die. It is about enabling people to have a choice. We can refuse further treatment for an illness, we can refuse to take medication.

10 Things You Should Do When A Loved One Is Diagnosed With Motor Neurone Disease

Susan Graham | Posted 28.06.2017 | UK Lifestyle
Susan Graham

Jaspal lived with the disease for 10 years. I was one of her carers for this time and through my experience supporting Jaspal, I have compiled a list of 10 things you should do when a loved ones tells you they have been diagnosed with MND.

'Extraordinary' Motor Neurone Disease Campaigner, Gordon Aikman, Dies Aged 31

The Huffington Post | Natasha Hinde | Posted 03.02.2017 | UK Lifestyle

Campaigner Gordon Aikman has passed away after a three-year battle with motor neurone disease (MND). The 31-year-old was diagnosed with the terminal ...

Future Of The NHS - A Patient's Eye View

Michael Wenham | Posted 20.01.2017 | UK Politics
Michael Wenham

My primary purpose here is, as a patient, to join calls, like those made by the 75 leading health experts to Theresa May on 11th January, for radical solutions to the break-down of our health and care system. It is not a problem for us that can wait for some utopian answer in 2020. Let's accept that we'll die - but avoid the unacceptable shortcut of the sirens' road towards euthanasia, the cheap solution.

It's Not Just Paralympian Athletes Who Have To Pee Themselves

Laura Moore | Posted 11.01.2017 | UK Lifestyle
Laura Moore

I am one of the people who didn't find that news shocking at all. In fact, in an odd way I was pleased that it had happened to someone in the public eye, someone who was brave enough to come forward and tell the media about it so that finally our voices have a chance of being heard.

Our Laws Are Failing Terminally Ill People Like Noel – That's Why We're Challenging Them

Sarah Wootton | Posted 10.01.2017 | UK
Sarah Wootton

To have the option of an assisted death in this country would relieve intolerable suffering for terminally ill people. It would allow them to wrestle back control from illnesses that are taking everything from them. It would represent true choice at the end of life.

A Woman With 'Locked In' Syndrome Has Learnt To Type With Just Her Mind

The Huffington Post | Sophie Gallagher | Posted 14.11.2016 | UK Tech

A brain implant has helped a woman with ‘locked-in’ syndrome to communicate again despite her severe paralysis. In 2008, Hanneke de Bruijne from ...

Two Years On, The #IceBucketChallenge Is Still Improving The Lives Of People With ALS

The Huffington Post | Rachel Moss | Posted 03.08.2016 | UK Lifestyle

Having raised more than $100 million (£75 million), the ALS #IceBucketChallenge has been hailed as the most successful social media campaign in histo...

Paediatric Nurse Receives Donations From Past Patients To Help Sick Husband

The Huffington Post | Natasha Hinde | Posted 22.06.2016 | UK Lifestyle

A paediatric nurse has received an influx of donations from the families of the children whose lives she helped save. Tracey Clohessey's husband Peter...

Ronnie Corbett's Wife Reveals Star's 'Courageous' Health Battle

The Huffington Post | Matt Bagwell | Posted 01.04.2016 | UK Entertainment

Ronnie Corbett had been battling motor neurone disease for over a year, his wife has revealed. The TV legend died on Thursday surrounded by his family...

BBC Documentary Sparks Online Debate About Assisted Suicide

The Huffington Post UK | Paul Vale | Posted 11.02.2016 | UK

A BBC film documenting the months leading up to the death of a man who took his own life in an assisted suicide in Switzerland was lauded across socia...

Inspirational Mum With ALS Defies Odds To Breastfeed Daughter

The Huffington Post UK | Amy Packham | Posted 16.09.2015 | UK Parents

A mother who found out she was pregnant two weeks before being diagnosed with ALS has defied odds by breastfeeding her daughter. Amanda Bernier pos...

Dad Dies Of Incurable Disease While Mum Is In Remission For Cancer

The Huffington Post UK | Amy Packham | Posted 01.09.2015 | UK Parents

A father with motor neurone disease has died three years after his wife was diagnosed with cancer. Paul and Clare Coulston were forced to make arra...

Stephen Hawking Film Makes Man Realise He Has Motor Neurone Disease

The Huffington Post UK | Rachel Moss | Posted 06.07.2015 | UK Lifestyle

When Paul Whyley watched the Stephen Hawking biopic The Theory of Everything, he noticed concerning similarities between himself and the lead characte...

His Muscles Are Rapidly Deteriorating, But Gordon Aikman Is On A Mission To Help Others

The Huffington Post UK | Natasha Hinde | Posted 18.06.2015 | UK Lifestyle

A heartbreaking diagnosis almost a year ago means that Gordon Aikman is now living his life in fast forward. In June 2014, the 30-year-old found ou...

Stephen Hawking Would Consider Assisted Suicide If He Became A Burden To His Loved Ones

Huffington Post UK | Sara C Nelson | Posted 03.06.2015 | UK

Professor Stephen Hawking has revealed he would consider assisted suicide – but not before he has “unravelled more of the universe”. The phy...

Charities - Guilt Tripping Doesn't Begin at Home

Chris Owen | Posted 02.06.2016 | UK Lifestyle
Chris Owen

Charities rely on building bonds and relationships with the public to drive awareness, fundraising and sharing of their stories and successes - bonds which are forged in empathy and humanity. People don't want to be bullied into supporting causes, (and, arguably, such 'support' would be disingenuous and short-lived at best).

This Motor Neurone Disease Ice Bucket Challenge Advert Really Misses The Mark

The Huffington Post UK | Kathryn Snowdon | Posted 02.06.2015 | UK

An advertising campaign designed to raise awareness of motor neurone disease has received a strong backlash from commuters. This week, the Motor Ne...

Heartbreaking Goodbye From News Presenter Losing His Job And His Life

The Huffington Post UK | Ryan Barrell | Posted 30.01.2015 | UK

North Carolina news presenter Larry Stogner has issued a heartbreaking goodbye on air after contracting Amyotrophic Lateral Sclerosis (ALS). Stogne...

Our Right to Choose When We Die Is Widely Curtailed for Very Good Reasons

Michael Wenham | Posted 17.03.2015 | UK
Michael Wenham

The truth is our right to choose is widely curtailed for very good reasons. We're not free to drive as fast as we choose, or in what direction we choose, or to smoke wherever we choose. The reason is the public good, to protect the vulnerable. It's simply untrue that suicide affects no one else. Nor is it true that assisted dying is a purely personal matter.

Are You a Charity Sheep?

Clive Norman | Posted 25.10.2014 | UK Lifestyle
Clive Norman

What is happening at the moment is almost a massed sheep like behaviour. Okay yes it is highlighting a terrible disease and raising funds. But ask yourself who is behind this and if you could follow it back to its source you would find a very clever advertising executive.

'Ice Bucket Challenge Death' Was A Fake

The Huffington Post UK | Thomas Tamblyn | Posted 20.08.2014 | UK Tech

An article which claimed that a woman died 30 seconds after carrying out the Ice Bucket Challenge has been revealed as a fake - or rather, an intentio...

This Is The Only #IceBucketChallenge You Need To See

The Huffington Post UK | Posted 20.08.2014 | UK Lifestyle

A US man with motor neurone disease has taken part in the #icebucketchallenge, a social media trend where participants film themselves throwing ice-co...

What Is Motor Neurone Disease And Is It The Same As ALS?

The Huffington Post UK | Brogan Driscoll | Posted 05.10.2017 | UK Lifestyle

Despite the fact that there are around 5,000 people living with Motor Neurone Disease (MND) in the UK at any one time, it is still a relatively unknow...