Rare Condition

Toddler Battling Muscular Condition So Rare 'No One Is Trying To Find A Cure'

The Huffington Post | Sophie Gallagher | Posted 29.07.2016 | UK Parents

Parents from South London have spoken out about the devastating condition that has left their son dependent on a ventilator and being fed through a no...

Meet The Girl Who Forgets Words As Soon As She's Read Them

Caters News Agency | Amy Packham | Posted 01.07.2016 | UK Parents

A girl who loves books has a rare condition which causes her to forget words as she reads them and has to re-learn them each time. Serena Jacques, ei...

Toddler Who Looked 8 Months Pregnant Saved By Dad's Kidney

PA Real Life | Amy Packham | Posted 11.07.2016 | UK Parents

A toddler who looked eight months' pregnant because of a rare disease has been saved thanks to her dad, who donated his kidney. Maddy Rybkin, now two,...

This Dad Gave His Six-Year-Old The Most Precious Gift

The Huffington Post | Amy Packham | Posted 09.06.2016 | UK Parents

A six-year-old boy who suffers from a rare syndrome has been given a new lease of life thanks to his father who donated his kidney. Ralph Frost, from ...

Five-Year-Old's Skin Grows At 10 Times The Normal Rate

Barcroft | Amy Packham | Posted 06.06.2016 | UK Parents

A five-year-old boy has a condition that causes his skin to grow at ten times the normal rate, leaving him at risk of a life-threatening infection. E...

Mum Explains Why It's Crucial Her Sons Are Fed Every Two Hours

The Huffington Post | Amy Packham | Posted 08.06.2016 | UK Parents

Update: The Traves family have requested we remove the Facebook embeds that were previously in this feature. A mum whose two sons need to eat every t...

Two-Year-Old Hits Puberty Due To 'Extremely Rare Condition'

Barcroft | Amy Packham | Posted 01.06.2016 | UK Parents

An Indian boy has shocked his parents by starting puberty at just two years old. The boy, from Delhi, referred to as Akash, suffers from a rare medica...

Stranger Raises £12,000 For Boy To Have Life-Changing Surgery

The Huffington Post | Amy Packham | Posted 20.05.2016 | UK Parents

A stranger raised thousands of pounds for a young boy to have a life-saving operation and see the world the "right way round". Julie Jones, 35, read a...

Mum Runs 5k Race Blindfolded For Son With Rare Condition

The Huffington Post | Amy Packham | Posted 16.05.2016 | UK Parents

An mum was inspired by her son with a rare eye condition to run a 5k race blindfolded for charity. Lucy Constable's four-year-old son Freddie was dia...

Seven-Year-Old Boy Couldn't Close His Eyes For Three Years

PA Real Life | Amy Packham | Posted 27.04.2016 | UK Parents

A seven-year-old boy is battling a rare skin condition that prevented him from being able to close his eyes properly for three years. Zeeshan 'Zee' Y...

Mum Pleads For Parents Not To Bring Dogs To School For Important Reason

The Huffington Post | Amy Packham | Posted 15.04.2016 | UK Parents

A mother is urging parents not to bring their dogs into school because it could cause her son to have an anaphylactic shock. The mum, from Sleaford, a...

Tummy Time Can Help Protect Babies From This Little Known Condition

The Huffington Post | Amy Packham | Posted 04.04.2016 | UK Parents

A mother whose son was diagnosed with plagiocephaly - also known as "flat head syndrome" - has opened up about the little-known condition in a bid to ...

Boy, 11, Has No Immune System

SWNS | Posted 26.02.2016 | UK Parents

An eleven-year-old boy suffers from a rare condition that has left him with no immune system. Jack Buchanan suffers from tricho hepato enteric (TH...

Parents Claim Son Is Being Denied The Cornflour Prescriptions He Needs To Survive

SWNS | Posted 11.02.2016 | UK Parents

The parents of a six-year-old boy say their son is being denied "life-saving cornflour" by chemists who they claim have replaced it with an untested d...

Meet The 'Bionic' Girl Who Rarely Sleeps Or Eats And Doesn't Feel Pain

SWNS | Posted 18.01.2016 | UK Parents

Doctors have called a seven-year-old girl with a rare disorder the "bionic girl" because she doesn't feel pain and never feels tired or hungry. Ol...

Rare Condition Means Sisters, Aged 9 And 14, Often Get Mistaken For Babies

PA Real Life | Amy Packham | Posted 18.12.2015 | UK Parents

A mother has spoken about why her nine and 14-year-old daughters are not much bigger than babies. Gwen Hartley's daughters, Lola and Claire, have a...

How Dislocated Joints Left This Teen Unable To Eat And Breathe

The Huffington Post UK | Natasha Hinde | Posted 23.06.2015 | UK Lifestyle

A teenager who can't eat properly and spends most of the time on oxygen because her joints constantly dislocate has revealed how she needs to raise £...

Mother And Teen Daughter Get Matching £50,000 Facelifts After Rare Condition Ages Skin

Barcroft | Posted 09.03.2015 | UK Lifestyle

A mother and daughter duo who were taunted and called "monkey" because of a rare skin condition have had the last laugh after being offered life-chang...

'It's Ruining My Life': Mum Tortured By Hundreds Of Orgasms Each Day

Barcroft | Posted 18.11.2014 | UK Lifestyle

A mother from Arizona, USA has told of the "embarrassment" and "humiliation" which she suffers on a daily basis because of a rare condition which caus...

The Woman Who Ate 4,000 Washing-Up Sponges

The Huffington Post UK | Georgia James | Posted 30.04.2012 | UK Lifestyle

Due to a rare disorder, Kerry Trebilock, 21, has eaten her way through 4,000 washing-up sponges and more than 100 bars of soap. The dental nurse fr...